Chicago, IL
Renaissance Chicago Downtown Hotel
Oct. 2-3, 2017

Kenneth Rogers

Program Manager - Orthopedic Research
Nemours Alfred I. duPont Hospital for Children

Ken Rogers has been associated with orthopedics starting as a patient in the mid 70's.  His experience as a patient (10 different injuries), athletic trainer, administrator and researcher has influenced his appreciation of both sides of the patient experience. After obtaining his PhD from Temple University, he worked at the University of Pennsylvania shoulder and elbow service and now at Nemours developing and implementing research programs. He became involved with a grant to help develop a Cerebral Palsy registry with Freeman Miller, MD (co-director of the cerebral palsy research program).

October 2, 2017
2:50pm - 3:20pm

In September 2012 after two years of development, Nemours hospital implemented a cerebral palsy patient registry that now includes more than 10,000 patient events. The organization built the registry to interface with its EHR to better treat a medically complex patient population with multiple procedures that require observation over time. 

The registry’s primary purpose is not for research but to align clinical operations and care coordination by helping to eliminate paper, redundant data entry, and to streamline the care process for both patient and caregiver. 

In this session, Nemours will explain how the registry works and share best practices and lessons learned for attendees considering a similar project.

Key takeaways:

  • Understand how whatever you build will affect all users - providers, patients and staff - in understanding patient experience.
  • The importance engaging all patients, parents, providers and staff in the development of the registry.
  • Understand and adapt to resources available in the development of a registry.

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